“Kittye’s story is an important one to tell. Without her resilience and determination, an entire family and its future generations may never have known about the rare condition for which they are at risk.

Hereditary paraganglioma-Pheochromocytoma syndrome (PGL-PCC) is estimated to occur in 1 in 300,000 to 1 in one million people. After her diagnosis, Kittye gladly participated in our annual “Cancer Genetics” presentation given to 3rd year medical students. We later received many positive reviews of her presentation, and students commented on how much they appreciated Kittye’s willingness to share her story. If these students learned anything from Kittye, it is that a good doctor listens to his/her patients.

We are honored to have had the opportunity to work with Kittye, and now her family members as they come for their own genetics consult.”


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